Apply for Genetic Funding Assistance Below!
Apply for Genetic Funding Assistance Below!
At birth, Quinn appeared to be perfectly healthy. It was not until her 4 month wellness check that we received the devastating diagnosis: Spinal Muscular Atrophy.
Thankfully, there was a newly FDA approved treatment that she was able to receive at 5 months but the fatal genetic disease had already progressed too far.
Quinn passed away on November 13, 2017 at only 9 months old.
With early detection and treatment, there is a strong likelihood that she would still be alive.
Most people, medical professionals included, are not familiar with Spinal Muscular Atrophy, even though it is the #1 genetic cause of death in infants.
Our goal is to create awareness and encourage genetic screening. We want to ensure that other families and medical professionals have the early knowledge that we lacked, as well as the financial resources for testing, so they do not have to endure the loss of a child to a genetic condition.
Your support and contributions will enable us to create awareness & assist others in obtaining genetic screening.
"She was born on a Thursday, at 3:51pm
Her parents saw those pretty blue eyes and named their baby Quinn.
Little did they know, about the impact she would have...
...On a Monday in November, at 3:51pm With loved ones gathered round her there, they said goodbye to Quinn.
Little did they know, about the impact she would have, on so many lives around the world with her smiles and quiet laugh. She said she’s going to Montana & she left us in the fall..."
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